epilepsy foundation

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Illinois: Medical Cannabis Physicians' Summit Aims To Educate Medical Community

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The Canna Law Group, in partnership with the Epilepsy Foundation of Greater Chicago, Americans for Safe Access, and the Marijuana Policy Project, is co-hosting the Illinois Medical Cannabis Physicians’ Summit on Friday, June 5, 2015 at the Westin Chicago River North.

The summit will educate licensed medical professionals on current medical cannabis research, state and federal law, and the Illinois Medical Cannabis Pilot Program. “Educating the medical community about medical cannabis treatment options is essential for the long-term success of the program,” said Rep. Lou Lang, prime sponsor of the current medical cannabis law.

The event will feature as its keynote speaker leading cannabis researcher Dr. Donald Abrams, who has conducted multiple FDA-approved studies on the medical benefits of cannabis. Dr. Suzanne Sisley, another clinical researcher on cannabis who studies its benefits for PTSD sufferers, will also speak at the summit.

“Many doctors need to better understand the current research behind medical cannabis,” said Dr. Abrams. “This is a chance to share my own first-hand research experiences at the University of California San Francisco and educate Illinois doctors about how I've applied those experiences in a clinical setting.”

Also speaking is Dr. Leslie Mendoza-Temple, chair of the Illinois Medical Cannabis Advisory Board, who said “This will be an important event for any medical professional who wants to understand the research, law, and administrative processes of a program that will help thousands of patients in Illinois.”

U.S.: Senators Gillibrand & Booker Meet With Families About Federal Medical Marijuana Bill

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Families with Children & Loved Ones in Need of Treatment Join Senators to Discuss Landmark Proposal to Let States Legalize Medical Marijuana

Leading National Epilepsy Organization Backs Bipartisan Medical Marijuana Bill

Senators Kirsten Gillibrand (D-NY) and Cory Booker (D-NJ) on Sunday joined New York and New Jersey families who would benefit from the new bipartisan bill to allow patients in states that have legalized medical marijuana to access the treatment without fear of federal prosecution.

The Senators also announced the support of the Epilepsy Foundation, which has endorsed the Compassionate Access, Research Expansion and Respect States (CARERS) Act that Booker and Gillibrand, along with Senators Rand Paul (R-KY) and Dean Heller (R-NV) introduced last week. The CARERS Act respects states’ ability that set their own medical marijuana programs and prevents federal law enforcement from prosecuting patients, doctors and caregivers in states that have legalized medical marijuana. Both New York and New Jersey have legalized use of medical marijuana.

California: Police Raids on Medical Marijuana Gardens Cut Off Treatment For Kids With Epilepsy

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Researchers announce that clinical trials involving anti-convulsive form of marijuana is showing "promise" in children

As promising results from clinical trials are announced in the use of medicinal cannabis (medical marijuana) to treat intractable epilepsy, those lawfully cultivating the plant in California are being raided by local law enforcement. Two gardens destroyed by police in the past two months in Mendocino County and Modesto contained a rare strain of medical marijuana rich in Cannabidiol (or CBD) used by children many of whom do not respond to other drug treatments.

On August 5, unidentified men in camouflage dropped from an unmarked helicopter onto the 120-acre property of Potter Valley resident and cancer survivor Susan Schindler, cutting down her lawfully cultivated medical marijuana plants. In addition to growing for herself, Schindler was cultivating rare strains of medical marijuana rich in CBD, a non-psychotropic constituent of the plant, which were being used orally by children with epilepsy.

Schindler was also cultivating plants rich in THCV, another active constituent (or cannabinoid) that was producing positive results for a patient with Parkinson's disease.

California: Epilepsy Foundation Conference Will Include Topic of Medical Marijuana

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By Steve Elliott
Hemp News

The Epilepsy Foundation, after voicing its support for medical marijuana research in February, announced last week that the 4th Biennial Epilepsy Pipeline Conference will highlight the most pressing issues faced by the epilepsy community, including the evaluation of medical marijuana.

This year's conference will also feature the annual "Shark Tank" competition, where new ideas from researchers and entrepreneurs are invited to compete for funding that will advance their product concepts with the promise of improving the lives of people with epilepsy, according to the Foundation.

The Epilepsy Pipeline Conference will be held June 5-7 at the Hyatt Regency San Francisco. Pharmaceutical, biotechnology and device industry executives, investors, clinical scientists, technology transfer executives and the epilepsy community are invited to hear directly from leader sin the field. You can register to attend the 2014 Epilepsy Pipeline Conference at http://bit.ly/PipelineConference. Registrants are encouraged to take advantage of early bird registration rates, available through May 12.

Illinois: Lawmakers To Hold Public Hearing On Allowing Medical Marijuana For People With Seizure Disorders

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State Lawmakers to Hold Public Hearing Tuesday On Proposal to Allow Access to Medical Marijuana for People With Seizure Disorders, Including Minors

The president of the Epilepsy Foundation of Greater Chicago, a family physician, and parents of children with seizure disorders will testify in support of SB 2636

The Illinois Senate Public Health Committee is scheduled to hold a public hearing Tuesday at 1 p.m. CT on a bill that would allow access to medical marijuana for people suffering from seizure disorders, including minors. The hearing will be held in Room 409 of the Illinois State Capitol.

The president of the Epilepsy Foundation of Greater Chicago, Kurt W. Florian, Jr.; a Moline-based family practitioner, Dr. Margy Millar; and parents of two children suffering from seizure disorders are scheduled to testify in support of the measure.

SB 2636, sponsored by Sen. Iris Martinez, would add seizure disorders to the Medical Cannabis Pilot Program Act that was approved last year by the Illinois State Legislature.

"Medical marijuana has been found to produce significant benefits for patients suffering from frequent and severe seizures," said Chris Lindsey, a legislative analyst for the Marijuana Policy Project (MPP). "These patients deserve the same right to relief as those suffering from other conditions that qualify under Illinois's medical marijuana law. We hope the committee members will agree this is a commonsense proposal."

U.S.: Epilepsy Foundation Calls For Increased Medical Marijuana Access and Research

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By Steve Elliott
Hemp News

In a groundbreaking statement on Thursday, the Epilepsy Foundation called for increased medical marijuana access and research to treat epilepsy.

"The Epilepsy Foundation supports the right of patients and families living with seizures and epilepsy to access physician directed care, including medical marijuana," reads the statement, from Philip M. Gattone, president and CEO of the Epilepsy Foundation, and Warren Lammert, chair of the Epilepsy Foundation Board of Directors.

"If a patient and their healthcare professionals feel that the potential benefits of medical marijuana for uncontrolled epilepsy outweigh the risks, then families need to have that legal option now -- not in five years or 10 years," the strongly worded statement reads.

"The Epilepsy Foundation calls for an end to Drug Enforcement Administration (DEA) restrictions that limit clinical trials and research into medical marijuana for epilepsy," the statement reads. "We applaud recent decisions that have allowed trials of Cannabidiol (CBD) oil, to begin in several states.

"Certain components of medical marijuana, including CBD, have shown effectiveness in animal studies, and there have been encouraging anecdotal reports from patients," the statement reads. "But further research and unbiased clinical trials are needed to establish whether and in what forms medical marijuana is or is not effective and safe. Restrictions on the use of medical marijuana continue to stand in the way of this research.

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